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CrowdFunding promotion Neuropsychological Center for Children with Cancer

posted Jun 18, 2015, 12:34 AM by J Shaw   [ updated Jun 18, 2015, 12:35 AM ]

Short Summary

  • I am an active volunteer at Aura Ion Foundation in UK and Romania. I am a clinical psychologist working with newborns, infants and children in the morning and a fundraiser in the afternoon for Aura Ion Foundation. 
  • I spent each minute of my student time studying neuropsychology on my own because in Romania it doesn't exist. Every day I try to make the lives of many children diagnosed with brain tumors a little better, but I can't due to no financial resources.
  • You will change the life of many children diagnosed with cancer and brain tumors that have no access to neuropsychological services.

What We Need & What You Get

  • We need about £ 50 000 to open this center.
  • Money goes to supplies, psychological tests needed, rent for the place and other facilities invoices. Because this project will run in Romania, unfortunately, we can't approach companies that produce psychological tests worldwide like Pearson, PAR because they have these tests mostly in English and we need them in Romanian. We've reached local companies that have translated and adapted those tests on Romanian population and are willing to offer discounts so each penny is important to keep the center alive!
  • We will open this center even if we don't reach this goal. We will use every penny to make better many children with cancer. We hope to raise as much as we can to keep it open for the longest time possible. 

Neuropsychological evaluation objective:

Assessing competencies and different areas of cognition and their possible impairments in areas like memory, attention, language, visualization function, executive function (decision-making, behavior, planning skills).

Such psychometric testing methods allow accurate assessment of cognitive disorders, a qualitative and quantitative assessment of the current cognitive and affective state. Unlike imaging techniques, test results also provide information about the extent and nature of the deficiency, identify neuropsychological issues associated with neurological disorders, effects of chemotherapy and radiation on the brain.

The Impact

Psychological services are very expensive in Romania. On private practices, one hour of psychotherapy starts from  € 25 when the majority of people have salaries between €200-300. The National State Insurance doesn’t want to reimburse directly psychologists for their services offered, even though the individual is paying a monthly fee to the state insurance. Each psychologist must close contracts with doctors that get reimbursed for their psychological services. In this case, the patient is unable to choose his psychologist. The patient is forced to go to the psychologist contracted by his doctor, even though this means a violation of his right to choose the psychologist. The extreme low budgets offered for the health system also caused a lack of psychologists in hospitals. Therefore, the patient diagnosed with cancer, with extremely limited financial resources, spent mostly on medication and medical supplies, is unable to find support, remains with cognitive deficits after chemotherapy and radiation and barely have a neuropsychological treatment available. 

Inexistent services

Neuropsychological services are almost unavailable in Romania. They are provided by one of our members on the Neurological Ward at Marie Curie Hospital in Bucharest.

Unfortunately, that ward is dedicated to children with neurological problems that require surgery. Therefore, many other children with cancer not related to nervous system are left without those services

Chemo brain

People that go through the cancer treatment notice a mental cloudiness. Doctors have known for years that radiation treatment to the brain can cause thinking and memory problems. Recently, they have found that chemotherapy is linked to some of the same kinds of problems. Though the brain usually recovers over time, the sometimes vague yet distressing mental changes cancer patients notice, are real, not imagined. They might last a short time, or they might go on for years. These changes can make people unable to go back to their school, to work, or social activities, or make it so that it takes a lot of mental effort to do so. Chemo brain affects everyday life for many people, and more research is needed to help prevent and cope with it.

    Be a doctor for one day! 

    Some people just can't contribute, but that doesn't mean they can't help! Pleaseshare this campaign to all your family members, friends, social media followers tohelp us save the lives of many children diagnosed with cancer.

    The more money we will raise, the longer will be the time we will provide free neuropsychological services for children with cancer.

    Aura Ion Foundation" is a non-profit private company limited by guarantee registered at companies House, Company Number: 9544768.
    43 Broomfield Road, CM1 1SY Chelmsford, Essex
    +44 (0)7772 948903